Spina Bifida Hydrocephalus Scotland (SBH Scotland) provides a lifetime commitment of support and information to all those affected by spina bifida. In 2017 the Foundation has awarded over £12,000 to SBH Scotland to purchase toys, t-shirts, folders, books and booklets for young children with spina bifida, as well as to support respite holidays at a fully adapted cottage in Fife, Scotland.
Meet Ella and discover what she is ABLE to do:
Ella is an amazing Ambassador for SBH Scotland who never lets her disabilities hold her back and often presents at their events. Ella enjoys creating PowerPoint presentations so much, that she now makes her own presentations to accompany her speeches.
Ella and family have received support from SBH Scotland since Ella’s birth 13 years ago. Ella’s mum Melanie shares how SBH Scotland helps Ella fulfil her potential:
“We didn’t know Ella had spina bifida and hydrocephalus until the day she was born. At that point we felt like our world had collapsed. We were scared, worried and couldn’t stop crying. Within a day of Ella’s birth my husband and I visited the SBH Scotland Support Workers for information, reassurance and advice. I cried the whole time and thought there was no hope for Ella but Anne, the SBH Scotland Support Worker, told us in no uncertain terms not to write Ella off! She was clear that, with the right support and care, Ella could reach her potential in life. Ella is now 13 and has undergone many operations and procedures, the most recent being her spinal fusion 2 years ago, which lasted over 9 hours followed by an emergency shunt procedure, but she’s a real force of nature! Those words from Anne in the first days have got us through many a difficult day, their support has been invaluable and because of the SBH Scotland groups we’ve also built up a great base of friends for Ella, and for us as parents. Ella is quite simply Ella – a wonderful inspiration to everyone she meets, you couldn’t ask for more than that as a parent.”