Individually, chromosome disorders are incredibly rare, but collectively they are common. At least one in every 200 babies is born with a rare chromosome disorder, many of them being severely disabled. Some people with chromosome disorders have no outward signs but face medical, educational or behavioural issues.
Rare chromosome disorders can occur in any family. Receiving a diagnosis that your child has a chromosome disorder can be a deeply painful and overwhelming experience.
Unique offers specialist information and emotional support to families affected, as well as helping the medical and other professionals working with and caring for them. Unique matches families with others throughout the world who are affected by similar disorders so that they can share information and support for each other.
The money Unique was awarded by the Foundation helped to maintain the much needed ‘listening ear’ telephone and email service which provides information to families on the meaning of chromosome disorders and how they are likely to affect their children. The ‘listening ear service’ it’s a lifeline to the hundreds of families contacting Unique each month.
“As far as I have found Unique is the ONLY source of any significance in the entire world. Hats off to you, you are providing light where no one else is.” Unique member
Unique has received over £9,000 in funding from DM Thomas Foundation since 2013.